Oct. 8th, 2023

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[personal profile] tanaqui
[personal profile] satsuma left a comment on our sticky post flagging up S.2767 - SSI Savings Penalty Elimination Act.

This legislation would change the amount an individual on SSI can save from $2,000 to $10,000, and the amount a family can save from $3,000 to $20,000. It would also adjust the limit for inflation in the future and exclude retirement savings.

This would ensure people on SSI aren't always teetering on the edge of disaster if they have just one unexpected expense, such as needing a repair to their assistive technology or needing to move home, as well as helping family members move into work or accept better jobs (or marry their long-term partners!) without risking the loss SSI benefits in the family.

There's more information in this article.
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[personal profile] tanaqui
[personal profile] toastykitten left a great comment on our last check in post about two actions you can take to support pediatric cancer care.

Quoting from the post:
As pediatric cancers are very rare, there is often very little research and funding available, leaving many families stranded for support and care. [...] There are a few things that this community is asking support for:

1. Renewal of the Gabriella Miller 2.0 Kids First Research Act - this is the year it sunsets. This act supports funding and data gathering for kids with pediatric cancers and rare diseases.
2. Co-sponsor/support the Give Kids a Chance Act, HR3433, which provides for combinations of new cancer drugs for kids with cancer. This one does not cost taxpayers any money.

Both of these have been supported by both Republicans and Democrats, but there is a lack of awareness, as it's not an easy topic to broach for many people. My House Rep Swalwell, has pledged his commitment. So if you are so inclined, please send a message to your legislators!

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